SONG-Kids Delphi Survey

Tell us what matters to you!

We are conducting an international survey to find out what effects of treatment and care (also known as outcomes) are important to children and adolescents with kidney disease, family members, caregivers, and health professionals. The survey will ask you to rate the importance of outcomes e.g. growth, tiredness, kidney function, pain, infection, school, and to suggest other outcomes that matter to you. You are invited to complete three short surveys (in Round 2 and 3, you will see a summary of the group results).

If you would like to take part, please click on one of the survey links below to begin!


I am a child/young person (aged up to 21 years) with kidney disease – click to begin the survey

I am an adult – parent, family member, health professional – click to begin survey


Je suis un enfant / jeune (âgé de moins de 21 ans) atteint d’une maladie rénale – cliquez pour commencer le questionnaire

Je suis un adulte – parent, membre de la famille, professionnel de santé – cliquez pour commencer le questionnaire


Coming soon

If you have any questions or issues, contact us at