SONG-Kids Delphi Survey

Tell us what matters to you!

We are conducting an international survey to find out what effects of treatment and care (also known as outcomes) are important to children and adolescents with kidney disease, family members, caregivers, and health professionals. The survey will ask you to rate the importance of outcomes e.g. growth, tiredness, kidney function, pain, infection, school, and to suggest other outcomes that matter to you. You are invited to complete two short surveys (in Round 2, you will see a summary of the group results from the first round).

If you would like to take part, please click on one of the survey links below to begin!


I am a child/young person (aged up to 21 years) with kidney disease – click to begin the survey

I am an adult – parent, family member, health professional – click to begin survey


Coming soon


Coming soon

If you have any questions or issues, contact us at