SONG-PD

Registration for the SONG-PD Delphi Survey is now closed.

 

Why develop core outcomes in peritoneal dialysis?

Worldwide, approximately 11% of patients on dialysis receive peritoneal dialysis (PD). Whilst PD may offer more autonomy and freedom compared with haemodialysis, infection, hospitalisation, symptom burden, and patient/caregiver burnout and fatigue remain as major challenges to the success of PD. To some extent, this may be due to the inconsistency, heterogeneity, and lack of patient-prioritised outcomes reported in trials in patients on PD.

The aim of the Standardised Outcomes in Nephrology-Peritoneal Dialysis (SONG-PD) study is to establish a core outcome set for trials in patients on PD based on the shared priorities of all stakeholders; which can help to improve the contribution of trials to shared-decision making.

SONG-PD Steering Group

David Johnson (Chair) | University of Queensland, Australia
Angela Wang | The University of Hong Kong, Hong Kong
Edwina Brown | Imperial College London, United Kingdom
Gillian Brunier | University of Toronto, Canada
Jeffrey Perl | University of Toronto, Canada
Jie Dong | Peking University, China
Martin Wilkie | NHS Sheffield Teaching Hospital, United Kingdom
Rajnish Mehrotra | University of Washington, United States
Roberto Pecoits-Filho | Pontificia Universidade Catolica do Paranam, Brazil
Sarala Naicker | Wits University, South Africa
Sue-Ann Dunning | Australia
Tony Dunning | Southbank TAFE, Australia
Project coordinator: Karine Manera, The University of Sydney

Project updates

SONG-PD commenced in 2017. Focus groups and interviews are getting underway in Australia, Hong Kong and the United States.