SONG-PD

***Scroll down to register for the SONG-PD Delphi Survey***

Why develop core outcomes in peritoneal dialysis?

Worldwide, approximately 11% of patients on dialysis receive peritoneal dialysis (PD). Whilst PD may offer more autonomy and freedom compared with haemodialysis, infection, hospitalisation, symptom burden, and patient/caregiver burnout and fatigue remain as major challenges to the success of PD. To some extent, this may be due to the inconsistency, heterogeneity, and lack of patient-prioritised outcomes reported in trials in patients on PD.

The aim of the Standardised Outcomes in Nephrology-Peritoneal Dialysis (SONG-PD) study is to establish a core outcome set for trials in patients on PD based on the shared priorities of all stakeholders; which can help to improve the contribution of trials to shared-decision making.

SONG-PD Steering Group

David Johnson (Chair) | University of Queensland, Australia

Angela Wang | The University of Hong Kong, Hong Kong

Edwina Brown | Imperial College London, United Kingdom

Gillian Brunier | University of Toronto, Canada

Jeffrey Perl | University of Toronto, Canada

Jie Dong | Peking University, China

Martin Wilkie | NHS Sheffield Teaching Hospital, United Kingdom

Rajnish Mehrotra | University of Washington, United States

Roberto Pecoits-Filho | Pontificia Universidade Catolica do Paranam, Brazil

Sarala Naicker | Wits University, South Africa

Sue-Ann Dunning | Australia

Tony Dunning | Southbank TAFE, Australia

Project coordinator: Karine Manera, The University of Sydney

Project updates

SONG-PD commenced in 2017. Focus groups and interviews are getting underway in Australia, Hong Kong and the United States.

Register for the SONG-PD Delphi Survey

Take part in the SONG-PD Delphi Survey to have your say on what outcomes are important for research in peritoneal dialysis! The survey is set to launch later this year. Please register your details here if you would like to be on the Delphi Panel.

Register for the SONG-PD Delphi Survey