Kidney transplantation improves survival, health, and quality of life outcomes in many patients with end-stage kidney disease compared with dialysis. Major advances in treatment have dramatically improved short-term graft survival and acute rejection. However, there are still a number of challenges to the success of kidney transplantation. Kidney transplant recipients need to take medications that suppress their immune system, which can place them at a higher risk of of cancer, cardiovascular disease, diabetes, and infection.
Many clinical trials have been conducted in kidney transplantation but a wide variety of different outcomes are reported and in different ways, and it is unclear whether they are important to people who have received a kidney transplant. There has been no agreement about what are the most important outcomes to measure and report in studies for kidney transplant recipients. The Standardised Outcomes in Nephrology – Transplantation (SONG-Tx) study aims to develop a core outcome set for trials in kidney transplantation that is based on the shared priorities of patients, family members, and health professionals .
Jeremy Chapman (Chair) | Westmead Hospital, The University of Sydney, Australia
Anthony Warrens | Queen Mary University of London, United Kingdom
David Rosenbloom | Health Services Advisory Group Inc ESRD Network 18, United States
Germaine Wong | Westmead Hospital, The University of Sydney, Australia
John Gill | University of British Columbia, St. Paul’s Hospital
Klemens Budde | Charité – Universitätsmedizin, Germany
Lionel Rostaing | Toulouse University Hospital, France
Lorna Marson | The University of Edinburgh, United Kingdom
Michelle Josephson | The University of Chicago, United States
Peter Reese | University of Pennsylvania, United States
Tim Pruett | University of Minnesota, United States
SONG-Tx involves 3-phases:
SONG-Tx Delphi survey
The SONG-Tx Delphi Survey has closed. The Delphi panel included 1018 members (461 patients/family members, and 557 health professionals).
SONG-Tx Consensus Workshops
June 2016 | Boston
The SONG-Tx Boston Consensus workshop was held Monday 13th June 2016 during the American Transplant Congress in Boston. Many thanks to the 68 kidney transplant recipients, family members, and health professionals who engaged in very interesting and thought-provoking discussion on establishing core outcomes for trials in kidney transplantation. (Click photo for larger image)
Contributors: The full list of attendees and collaborators are listed in the SONG-Tx Boston Workshop Program.
August 2016 | Hong Kong
A second workshop was held Saturday 20th August 2016 during The Congress of The Transplantation Society to discuss the findings and potential core outcome set for trials in kidney transplantation. Building on the key points from Boston workshop, the discussions were largely focussed on graft-related outcomes, quality of life and patient-reported outcomes, and strategies for implementation.
Contributors: The full list of attendees and collaborators are listed in the SONG-Tx Hong Kong Workshop Program