Expert Working Groups

The Expert Working Groups are responsible for establishing core outcomes measures for each core outcome domain established within each stream of the SONG Initiative.

SONG-HD Cardiovascular disease

David Wheeler (Chair) | University College London, United Kingdom
Adeera Levin | University of British Columbia, Canada
Angela Wang | The University of Hong Kong, Hong Kong
Christoph Wanner |Universitätsklinikum Würzburg, Germany
Chuck Herzog |Hennepin County Medical Center, United States
Faiez Zannad | Université de Lorraine, France
Giovanni Strippoli | University of Bari, Italy
Jolanta Malyszko | Medical University of Bialystik, Poland
Marcello Tonelli | University of Calgary, Canada
Meg Jardine | The George Institute for Global Health, Australia
Michael Rocco | Wake Forest University, United States
Tazeen Jafar | Duke – National University Singapore, Singapore
Vera Krane |Universitätsklinikum Würzburg, Germany
Will Herrington | Oxford University, United Kingdom

Project coordinator: Emma O’Lone, The University of Sydney, Australia

SONG-HD Vascular access complications

Carmel Hawley (Chair) | Princess Alexandra Hospital, Australia
Kevan Polkinghorne | Monash Medical Centre, Australia
Charmaine Lok | University of Toronto, Canada
Eric Chemla | St George’s University NHS Foundation Trust, United Kingdom
Raymond Vanholder | Ghent University, Belgium
Robert Quinn | University of Calgary, Canada
Timmy Lee | University of Alabama at Birmingham, United States
Tushar Vachharajani | Hefner VA Medical Center, United States
Lai-Seong Hooi | Hospital Sultanah Aminah, Malaysia
Li Zuo |Peking University People’s Hospital, China

Project coordinator: Andrea Viecelli, Princess Alexandra Hospital, Australia

SONG-HD Fatigue

Mark Unruh (Chair) | University of New Mexico, United States
Donal O’Donoghue | Salford Royal NHS Foundation Trust, United Kingdom
Gregorio Obrador | Universidad Panamericana, Campus México, Mexico
Juan Dapueto | Univesridad de la Republica, Uruguay
Mary Amanda Dew | University of Pittsburgh, United States
Michael Germain | Baystate Medical Center, United States
Richard Fluck | Derby Hospitals NHS Foundation Trust, United Kingdom
Sara Davison | University of Alberta, Canada
Vanita Jassal | University of Toronto, Canada

Project coordinator: Angela Ju | The University of Sydney, Australia

SONG-HD Mortality

Project coordinator: Emma O’Lone, The University of Sydney, Australia