Expert Working Groups

The Expert Working Groups are responsible for establishing core outcomes measures for each core outcome domain established within each stream of the SONG Initiative.

SONG-HD Cardiovascular disease

David Wheeler (Chair) | University College London, United Kingdom

Adeera Levin | University of British Columbia, Canada

Angela Wang | The University of Hong Kong, Hong Kong

Christoph Wanner |Universitätsklinikum Würzburg, Germany

Chuck Herzog |Hennepin County Medical Center, United States

Faiez Zannad | Université de Lorraine, France

Giovanni Strippoli | University of Bari, Italy

Jolanta Malyszko | Medical University of Bialystik, Poland

Marcello Tonelli | University of Calgary, Canada

Meg Jardine | The George Institute for Global Health, Australia

Michael Rocco | Wake Forest University, United States

Tazeen Jafar | Duke – National University Singapore, Singapore

Vera Krane |Universitätsklinikum Würzburg, Germany

Will Herrington | Oxford University, United Kingdom

 

Project coordinator: Emma O’Lone, The University of Sydney, Australia

SONG-HD Vascular access complications

Carmel Hawley (Chair) | Princess Alexandra Hospital, Australia

Kevan Polkinghorne | Monash Medical Centre, Australia

Charmaine Lok | University of Toronto, Canada

Eric Chemla | St George’s University NHS Foundation Trust, United Kingdom

Raymond Vanholder | Ghent University, Belgium

Robert Quinn | University of Calgary, Canada

Timmy Lee | University of Alabama at Birmingham, United States

Tushar Vachharajani | Hefner VA Medical Center, United States

Lai-Seong Hooi | Hospital Sultanah Aminah, Malaysia

Li Zuo |Peking University People’s Hospital, China

 

Project coordinator: Andrea Viecelli, Princess Alexandra Hospital, Australia

SONG-HD Fatigue

Mark Unruh (Chair) | University of New Mexico, United States

Donal O’Donoghue | Salford Royal NHS Foundation Trust, United Kingdom

Gregorio Obrador | Universidad Panamericana, Campus México, Mexico

Juan Dapueto | Univesridad de la Republica, Uruguay

Mary Amanda Dew | University of Pittsburgh, United States

Michael Germain | Baystate Medical Center, United States

Richard Fluck | Derby Hospitals NHS Foundation Trust, United Kingdom

Sara Davison | University of Alberta, Canada

Vanita Jassal | University of Toronto, Canada

 

Project coordinator: Angela Ju | The University of Sydney, Australia

SONG-HD Mortality

Project coordinator: Emma O’Lone, The University of Sydney, Australia