Steering Groups

Each Steering Group is convened to develop core outcome domains within each stream of the SONG Initiative.

SONG-HD

Jonathan Craig (Chair) | The University of Sydney; The Children’s Hospital at Westmead, Australia
Braden Manns | The University of Calgary, Canada
Brenda Hemmelgarn | The University of Calgary, Canada
David Wheeler | University College London, United Kingdom
Peter Tugwell | University of Ottawa, Canada
Sally Crowe | Crowe Associates Ltd, United Kingdom
Tess Harris | PKD International; UK Polycystic Kidney Disease Charity, United Kingdom
Wim Van Biesen | Ghent University Hospital, Belgium
Wolfgang Winkelmayer | Baylor College of Medicine, United States
Allison Tong | The University of Sydney; The Children’s Hospital at Westmead, Australia

Project coordinator: Nicole Evangelidis, The University of Sydney

SONG-Tx

Jeremy Chapman (Chair) | Westmead Hospital, The University of Sydney, Australia
Anthony Warrens | Queen Mary University of London, United Kingdom
David Rosenbloom | Health Services Advisory Group Inc ESRD Network 18, United States
Germaine Wong | Westmead Hospital, The University of Sydney, Australia
John Gill | University of British Columbia, St. Paul’s Hospital
Klemens Budde | Charité – Universitätsmedizin, Germany
Lionel Rostaing | Toulouse University Hospital, France
Lorna Marson | The University of Edinburgh, United Kingdom
Michelle Josephson | The University of Chicago, United States
Peter Reese | University of Pennsylvania, United States
Tim Pruett | University of Minnesota, United States

Project coordinator: Nicole Evangelidis, The University of Sydney

SONG-Kids

Jonathan Craig (Chair) | The University of Sydney and The Children’s Hospital at Westmead, Australia
Aditi Sinha | All India Institute of Medical Sciences, India
Allison Dart | University of Mannitoba, Canada
Allison Eddy | University of British Columbia, Canada
Debbie Gipson | University of Michigan, United States
Detlef Bockenhauer | University College London, United Kingdom
Hui-Kim Yap | National University of Singapore
Jaap Groothoff | Emma Children’s Hospital Academic Medical Centre, The Netherlands
Michael Zappitelli | Montreal Children’s Hospital, Canada
Nick Webb | The University of Manchester, United Kingdom
Stephen Alexander | The Children’s Hospital at Westmead, Australia
Stuart Goldstein | Cincinnati Children’s Hospital Medical Center, United States
Susan Furth | University of Pennsylvania, United States
Susan Samuel | University of Calgary, Canada

Project coordinator: Camilla Hanson, The University of Sydney

SONG-PD

David Johnson (Chair) | University of Queensland, Australia
Angela Wang | The University of Hong Kong, Hong Kong
Dyke Dunning | Southbank TAFE, Australia
Edwina Brown | Imperial College London, United Kingdom
Gillian Brunier | University of Toronto, Canada
Jeffrey Perl | University of Toronto, Canada
Jie Dong | Peking University, China
Martin Wilkie | NHS Sheffield Teaching Hospital, United Kingdom
Rajnish Mehrotra | University of Washington, United States
Roberto Pecoits-Filho | Pontificia Universidade Catolica do Paranam, Brazil
Sarala Naicker | Wits University, South Africa

Project coordinator: Karine Manera, The University of Sydney

SONG-PKD

Gopala Rangan (Chair) | The University of Sydney, Australia
Albert Ong | University of Sheffield, United Kingdom
Andreas Serra | University of Zurich, Switzerland
Arlene Chapman | University of Chicago, United States
Curie Ahn | Seoul National University Hospital, South Korea
Dongping Chen | The Second Military Medical University, China
Helen Coolican | PKD Foundation of Australia, Australia
Juliana Tze-Wah Kao | National Taiwan University Hospital, Taiwan
Ron Gansevoort | University Medical Center Groningen, Netherlands
Ronald Perrone | Tufts Medical Center, United States
Tess Harris | PKD International, United Kingdom
Vicente Torres | Mayo Clinic, United States
York Peh | University of Toronto, Canada

Project coordinators: Yeoungjee Cho, University of Queensland; Benedicte Sautenet, University of Tours