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What were the top 5? Fatigue/energy, survival (defined by patients as resilience and coping, ability to travel, dialysis-free time, impact on family, and ability to work. Full article in the American Journal of Kidney Disease now published online.
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Glomerular Disease (glomerulonephritis) is a group of diseases that injure the part of the kidney that filters blood (called glomeruli). Other terms you may hear used are nephritis and nephrotic syndrome. Join the Delphi Panel by taking part in a global survey, which asks about what impacts of treatment and disease are important to you […]
SONG E-Newsletter December 2018 Edition Dear Allison, It’s been full steam ahead in 2018 for SONG with the involvement of over 5500 patients, families and health professionals working towards establishing core outcome sets across the spectrum of chronic kidney disease. Your involvement is needed to help identify and address outcomes that are important to patients, families and their […]