This registration form is for patients/family members/caregivers only.

Patients with autosomal dominant polycystic kidney disease (ADPKD) and their families are invited to attend a workshop to talk about what outcomes are important for research in PKD. The workshop will involve approximately 70 patients, family members/caregivers, and health professionals. All participants will be named as a contributor in the report. The workshop is free. However, numbers are limited because of venue restrictions so please complete the following form if you would like to register to attend the SONG-PKD workshop.
We will confirm registration and provide further details (including the time, venue and reimbursement) by email as soon as possible.